Ken, my son who lived with me, killed himself the day after Christmas. I’m still in shock and disbelief. I’ll write more later..
I walked forty steps with my walker today. Breathless afterwards and had to rest, but it’s a beginning.
The past few weeks have been brutal, physically. Today was more of the same but I decided I can’t go on like this. I have to do something! So I pushed through discomfort and fear, clenched my teeth and just DID it! Jenny walking beside me. The sun is shining, the weather is mild. I’m alive again!
I thought I’d review my experience of 2012 tonight and maybe list some wishes for 2013, but my mind took me to another place. Earlier this evening I started a novel by Helen Garner, “The Spare Room,” and I started thinking about my son, John, johnshome.wordpress.com , who died of colon cancer in February, 2001. The book is about two friends, one of whom is dying of cancer. But when I thought of John, Cancer wasn’t what I thought of.
I remembered an experience John had at a new middle school he attended after we moved to Connecticut from Indiana. He was taken into a booth in the boy’s bathroom and beat up by a boy from a corrective institution. The boy was there on some kind of grant from the government, I believe, a trial program for delinquent boys. The boy took John’s watch, gave him a black eye, a busted lip and a messed up face. John was borderline autistic, a mild mannered, gentle soul who was trusting. Even though the other boy had no marks or injuries, the incident was treated as a “scuffle between boys.”
Even though John was hurting physically, he was mostly injured emotionally. He drew into himself, stayed up late at night teaching himself to play the guitar, picking out soft, haunting tunes. He checked a book out of the library called “Violence in America.” It broke my heart.
I was so angry, I took him to the principal’s office and insisted the principal explain to him why nothing was being done about the boy who hurt him. I don’t remember the explanation, but it was lame. It was obvious that something political was going on. I took John to the head of the education board, Again, sympathy, but no help. I called the local newspaper. A lot of sympathy but no help when the reporter learned where the other boy was from.
I think John and I both lost faith and respect at that time for people in high places. It’s been a long road trying to change my opinion.
Not a very pretty story. I’m sorry I can’t do better, especially today when I should be looking back at the positives in my life and thinking about going forward. But this is real; anything else I might write would be forced.
Tomorrow, perhaps, I’ll take stock and look ahead. For now, I’m sending John a hug and a prayer, and then I’ll get back to my novel.
This morning I ordered the 2013 Poet’s Market from Amazon. I’ve made a promise to myself to send out at least one poem a month. I haven’t tried to publish in literary magazines or small presses in years. I hate the business end of it and would rather spend the time creating but it IS nice, once in awhile, to see my poems in print along with other poets. Also, at this time in my life, sending out the poems gives me a purpose, something to look forward to, whether the poems are published or not. My life has become so humdrum, so void of freshness or excitement. This will be an adventure.
About the only thing that motivates me these days is my girl, JennyPenny. I’m lucky to have her. Otherwise I’d probably just sit here and rot. But she has to be fed twice a day, watered, let out about every hour or two and get her medicine twice a day. Which means I have to get off my duff, if only to transfer from bed to wheelchair, and move myself around. Yes, that’s right. Bed! Embarrassing as it is, I spend most of my day on my bed. Reclining, with legs stretched out, back supported by pillows.
And that has got to change. The longer I stay here in my bedroom, the more strength I lose and the weaker I get. I notice my legs aren’t as sturdy as they used to be. I’m losing muscle. Just a small amount of exercise leaves me weak and breathless. If I stand longer than a few minutes, my blood pressure goes up too high. Then I feel light headed and faint. It’s a viscous circle. The longer I stay on my bed, the worse I feel and the worse I feel, the more I want to operate from my bedhome.
What’s operating most in this viscous circle is fear. The physical problems, along with the consequences of not pushing myself, are real. And scary.
I know I could do better. I’ve got to just DO it! Start slow and build up. I don’t know what I can regain of what I’ve lost, but something, I’m sure. Yesterday I walked back and forth in the sun room about four or five times holding onto a walker and felt no ill effects. I’ve got to do this every day. And I’ve got to move out of my bedroom into the sunroom.
It’s bright and pleasant there, with a view of the yard, my neighbors, and vehicles going down Luster. There’s a world out there I don’t want to lose contact with.
My love for the bedroom started when I was a small child and sick. I spent much time in bed reading, writing, dreaming. Even when I wasn’t sick, I could hide out in my room from my brothers, who loved to tease me. I was the only girl in the family until after I graduated from high school. After I had Rheumatic Fever and a mitral valve prolapse, Mother became very protective of me. She wouldn’t let me do heavy chores or go for long walks. Once, in high school, when my classmates went on a hike, I sat in the back of a pickup which was transporting the picnic supplies to our destination. The message was: I was different from everyone else, weaker, not quite up to snuff. It’s a concept I’ve had to fight all my life and am still having problems with in my old age.
But now, I have to find the strength and courage to change my concept of myself and to be more active, to live a normal life.